the power of partnership in hemophilia – POLITICO
Positively, scientific advances in hemophilia care have opened opportunities for patients to better manage the physical manifestations of…
Rare diseases
‘Parkinson’s is a man-made disease’ – POLITICO
In the summer of 1982, seven heroin users were admitted to a California hospital paralyzed and mute. They…
India needs to make drugs to combat rare diseases
Apr 7, 2025 07:46 IST First published on: Apr 7, 2025 at 07:46 IST Share Three decades have…
Belgium wanted a drug shortages bill. It’s not happy with the EU’s plan. – POLITICO
While he acknowledged the act is an “important step forward,” he added that the “proposed funding is insufficient,…
She faced major hurdles in her rare disease fight. These barriers can cost lives, experts say
When Madi Vanstone was 11, she needed life-changing medication. However, when she found it, it came with a…
Doctors present first barrier for rare disease patients – POLITICO
Vytenis Andriukaitis, a former European health commissioner who is now a European parliamentarian, is all for introducing an…
Resetting Europe’s Innovation Compass – POLITICO
As other regions ramp up their investments and streamline regulatory frameworks, Europe cannot afford to become a secondary…