A mother with over 700,000 TikTok followers has revealed her daughter has died aged just 10 months after a lifelong battle with an incurable skin condition.
Hannah Campbell announced on Tuesday that her little one, Elliana Rose Campbell, tragically passed ‘peacefully’ overnight after fighting junctional epidermolysis bullosa (JEB) – an extremely rare and severe condition that causes fragile, blistering skin.
A baby with this condition may develop a hoarse-sounding cry from continual blistering and scarring of the vocal cords, according to Mayo Clinic.
Breaking the news of Elliana’s death in a video shared on social media, which has since amassed over 10 million views, Hannah said: ‘Our sweet girl Elliana Rose lost her battle last night. She passed peacefully, wrapped in love.
‘I don’t know what to do with myself today. I’m heartbroken, and I’m angry.
‘No child should have to endure what she did. EB stole her from us. Let’s fight for a cure so no other family has to feel this. Thank you for loving her with us.’
Hannah Campbell (left) has announced the passing of her daughter Elliana aged 10 months. She had been raising awareness of epidermolysis bullosa since Elliana’s diagnosis last year
Hannah had documented Elliana’s journey on TikTok in a bid to raise awareness about JEB, posting hundreds of videos to her account titled ellianas_journey.
On Sunday, Hannah revealed that Elliana’s health was rapidly declining and that she hadn’t opened her eyes in 24 hours.
Alongside a video, she wrote: ‘Ellie is still with us, but her body is tired. She hasn’t opened her eyes, eaten, and can hardly cry.
‘We’re holding her close and loving her through every breath.’
Tributes have been pouring in for baby Elliana, with many expressing their heartache over her passing.
‘All moms are crying today,’ one said. ‘My condolences to your family.’
Another penned: ‘I’ve never felt this level of pain for a complete stranger. Watching Ellie touched me in ways I’ve never experienced. There are no words. We are all crying with you.’
‘Hannah and Jacob, you are incredible parents,’ wrote a third. ‘Thank you for allowing us along this journey and to share your sweet girl with us. Praying for peace to fill your hearts and home.’
Another said: ‘Her story will never stop. She has inspired the world and helped raise so much awareness for EB.
‘Words will never make things easier. Take comfort in knowing she was loved by us all.’
Hannah and her partner Jacob welcomed Elliana on May 23, 2024.
In an interview with Fox Bangor last August, the couple shared that Elliana was diagnosed with JEB just two weeks after she was born.
‘From the beginning, we were holding out hope but every turn that happened it just got crushed,’ Jacob told the publication at the time.
‘Now we’re just trying to make her as comfortable as she can be as long as she’s with us.
‘There’s still disbelief. I don’t think it’s really going to hit us until it happens and it’s going to hit us like a brick wall.’
JEB It affects approximately three per million people per year in the United States, and as it currently stands, there is no cure for the condition.
In February, Hannah created a GoFundMe to raise money for Elliana’s medical bills.
‘We’ve had so many kind people from TikTok ask how they can help, so we’re setting this up for those who want to support Ellie,’ the page’s description reads.
‘She has Epidermolysis Bullosa (EB), a rare and painful condition that makes her skin extremely fragile. Her care involves constant wound care, special medical supplies, and adaptive equipment to keep her comfortable and safe.
‘Any donations will go toward her medical needs and supporting our family as we navigate this journey. We’re so grateful for all the love and kindness you’ve shown Ellie thank you for being part of her story.’